This thesis explores the topic of end-of-life care, with particular attention to the representations, experiences, and perspectives of professionals involved, in different capacities, in supporting individuals during the terminal phase of life. The main objective is to investigate the psychological, relational, ethical, and practical dimensions that characterize end-of-life care, focusing on how physicians, nurses, psychologists, and other professionals interpret suffering, self-determination, and care practices. The research is situated within the Italian debate on end-of-life issues, with particular reference to Law 219/2017 on informed consent and Advance Healthcare Directives (DAT). The adopted methodology is qualitative and involves semi-structured interviews with students enrolled in the Master in Death Studies & The End of Life, individuals with specific training or experience in the fields of death, dying, and end-of-life care. The collected data will be analyzed through thematic analysis in order to identify the main themes emerging from participants’ narratives. This study aims to contribute to a broader understanding of end-of-life issues by highlighting the perspectives of professionals and experts in the field and by offering reflections that may promote a more aware, integrated, and person-centered approach to care.
La presente tesi esplora il tema del fine vita, con particolare attenzione alle rappresentazioni, alle esperienze e alle prospettive di professionisti coinvolti, a diverso titolo, nell’accompagnamento della persona nella fase terminale. L’obiettivo principale è indagare le dimensioni psicologiche, relazionali, etiche e operative che caratterizzano il fine vita, approfondendo il modo in cui medici, infermieri, psicologi e altri esperti del settore interpretano la sofferenza, l’autodeterminazione e le pratiche di cura. La ricerca si inserisce nel dibattito italiano sul fine vita, con particolare riferimento alla Legge 219/2017 sul consenso informato e sulle Disposizioni Anticipate di Trattamento. La metodologia adottata è di tipo qualitativo e prevede la realizzazione di interviste semi-strutturate rivolte a corsisti del Master in Death Studies & The End of Life, figure con esperienza o formazione specifica nell’ambito della morte, del morire e dell’accompagnamento nel fine vita. I dati raccolti saranno analizzati attraverso un’analisi tematica, al fine di individuare i principali nuclei di significato emergenti dalle narrazioni degli intervistati. L’elaborato intende contribuire a una comprensione più articolata del fine vita, valorizzando il punto di vista di professionisti ed esperti e offrendo spunti di riflessione utili per promuovere un approccio alla cura più consapevole, integrato e centrato sulla persona.
L’accompagnamento al lutto tra dimensione relazionale e normativa: analisi tematica di interviste alla luce della Legge 219/2017
GADDINI, MARTINA
2025/2026
Abstract
This thesis explores the topic of end-of-life care, with particular attention to the representations, experiences, and perspectives of professionals involved, in different capacities, in supporting individuals during the terminal phase of life. The main objective is to investigate the psychological, relational, ethical, and practical dimensions that characterize end-of-life care, focusing on how physicians, nurses, psychologists, and other professionals interpret suffering, self-determination, and care practices. The research is situated within the Italian debate on end-of-life issues, with particular reference to Law 219/2017 on informed consent and Advance Healthcare Directives (DAT). The adopted methodology is qualitative and involves semi-structured interviews with students enrolled in the Master in Death Studies & The End of Life, individuals with specific training or experience in the fields of death, dying, and end-of-life care. The collected data will be analyzed through thematic analysis in order to identify the main themes emerging from participants’ narratives. This study aims to contribute to a broader understanding of end-of-life issues by highlighting the perspectives of professionals and experts in the field and by offering reflections that may promote a more aware, integrated, and person-centered approach to care.| File | Dimensione | Formato | |
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https://hdl.handle.net/20.500.12608/109716