Professional educators work in diverse healthcare settings, often facing complex situations that require the implementation of specific skills to respond to different needs in the most professional and humane way possible. This thesis aims to analyze the importance of this figure within pediatric chronicity, a condition that not only affects the child's clinical dimension, but profoundly influences their physical, psychological, and social development, drastically altering the balance of the entire family unit. The management of a chronic disease during pediatric age represents a significant burden not only for the minor, but also for their referral system. This paper will observe how taking care of a chronic disease requires a radical reorganization of family routines and roles, promoting the development of “family resilience”. It will be highlighted how the intervention of a professional educator is essential to strengthen, facilitate, and educate the family in managing stress by promoting effective listening and communication strategies to identify common goals for better coping with the treatment process. The professional educator, therefore, with his competent and humanly involved presence, represents a key figure on this journey; they will be the ones who will help transform vulnerability into possibility and fear into awareness, helping the family embrace chronicity as an integral, even if difficult, part of their lives while not seeing the disease as an incurable wound.
L'educatore professionale opera in molteplici contesti sanitari, affrontando spesso situazioni complesse che richiedono la messa in atto di competenze specifiche, al fine di rispondere a diversi bisogni nel modo più professionale e umano possibile. La presente tesi si propone di analizzare l'importanza di questa figura all'interno della cronicità pediatrica, una condizione che non coinvolge soltanto la dimensione clinica del bambino, ma ne influenza profondamente lo sviluppo fisico, psicologico e sociale, modificando drasticamente l’equilibrio dell’intero nucleo familiare. La gestione di una malattia cronica in età pediatrica rappresenta un carico importante, non solo per il minore, ma, anche per la sua famiglia. In questo scritto si osserverà come la presa in carico di una malattia cronica imponga una riorganizzazione radicale della routine e dei ruoli familiari, favorendo lo sviluppo alla “resilienza familiare”. Si evidenzierà come l’intervento dell’educatore professionale sia fondamentale per rafforzare, agevolare ed educare la famiglia a una buona gestione dello stress, promuovendo strategie di ascolto e comunicazione efficaci, al fine di individuare obiettivi comuni per affrontare al meglio il percorso di cura. L'educatore professionale, quindi, con la sua presenza competente e umanamente partecipe, rappresenta una figura chiave in questo cammino; sarà colui che aiuterà a trasformare la vulnerabilità in possibilità e la paura in consapevolezza, aiutando la famiglia ad accogliere la cronicità come parte integrante, seppur difficile, della propria vita e al contempo a non vedere la malattia come una ferita che non si può curare.
Educazione alla resilienza familiare: il ruolo dell’educatore professionale nei percorsi di cronicità pediatrica
FERACIN, ILARIA
2024/2025
Abstract
Professional educators work in diverse healthcare settings, often facing complex situations that require the implementation of specific skills to respond to different needs in the most professional and humane way possible. This thesis aims to analyze the importance of this figure within pediatric chronicity, a condition that not only affects the child's clinical dimension, but profoundly influences their physical, psychological, and social development, drastically altering the balance of the entire family unit. The management of a chronic disease during pediatric age represents a significant burden not only for the minor, but also for their referral system. This paper will observe how taking care of a chronic disease requires a radical reorganization of family routines and roles, promoting the development of “family resilience”. It will be highlighted how the intervention of a professional educator is essential to strengthen, facilitate, and educate the family in managing stress by promoting effective listening and communication strategies to identify common goals for better coping with the treatment process. The professional educator, therefore, with his competent and humanly involved presence, represents a key figure on this journey; they will be the ones who will help transform vulnerability into possibility and fear into awareness, helping the family embrace chronicity as an integral, even if difficult, part of their lives while not seeing the disease as an incurable wound.| File | Dimensione | Formato | |
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https://hdl.handle.net/20.500.12608/106013